On this day, he had some questions for me. He asked me what tests we had run on Deacon when we first got home. I told him, just the standard blood tests. He then said those words that would forever change our lives. "I think we need to have Deacon test for Muscular Dystrophy." I said "ok" not knowing what I was just agreeing too. I rushed home and emailed our pediatrician.
My email to her was this, How do you test for Muscular Dystrophy? Is that something that you can do or would we need to see a specialist? I saw her later that evening and she said it was a blood test. We could go to the hospital on Monday.
The next morning, the phone rang. Our pediatrician was worried and wanted to see if we could get in for the blood test on that day, Saturday. Of course, in our small town, that wasn't doable. We would have to wait until Monday to get the test run. She did share some things that we should research.
Ryan and I spent Saturday googling and slowly but surely a knot formed in our stomachs. Deacon did have several (most) of the symptoms for a particular Muscular Dystrophy.
Deacon enjoying a peanut butter frosting beater.